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On April 23, 2024 the MRF held an Ask the Expert webinar with Dr. Kelly Nelson, Professor of Dermatology at MD Anderson Cancer Center. This session was titled "Finding Support in the Adolescent and Young Adult Community". The focus of this webinar was to offer valuable insights into finding support, accessing resources, and the unique experiences of adolescents and young adults affected by melanoma. *This presentation was recorded in 2024
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In February of 2024, the MRF launched its first webinar series dedicated to exploring challenges that rural melanoma patients uniquely face as they seek care and treatment. During this first iteration, the panel examined what the patient experience may look like for those getting their skin checked, the potential barriers to access of care they may encounter, how that impacts the overall health outcome of this community and what is being done on the policy level to address this health equity issue. *This presentation was recorded in 2024
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On September 18, 2023 the MRF held an Ask the Expert webinar with Dr. Correa-Selm, Associate Professor of the Department of Dermatology at Morsani School of Medicine in the University of South Florida, and member of the Cutaneous Oncology Team at Moffitt Cancer Center. This session was titled" Melanoma in the Hispanic Population" and featured patient advocate, Jose Gonzalez. They spoke about the importance of skin care and sun protection in the Hispanic community. *This presentation was recorded in 2023.
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On August 29th, the MRF held an informative discussion featuring Dr. Alan Tan, Director of the genitourinary oncology program at Rush University medical center and co-leader of the precision medicine program to educate patients and the community on tumor-informed ctDNA as an option for residual disease detection, treatment response monitoring, and surveillance. *This presentation was recorded in 2023.
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On July 24, the MRF held an informative discussion featuring Dr. Michael A. Postow, Chief, Melanoma Service, Co-Director, Melanoma Disease Management Team and Associate Attending Physician from Memorial Sloan Kettering Cancer Center and patient advocate and panelist Bennie Lunsford. Special thanks #Replimune for sponsoring this important educational opportunity. *This presentation was recorded in 2023.
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An informative discussion featuring Dr. Mario Leitao Jr., Gynecologic Oncologist from Memorial Sloan Kettering Cancer Center, Dr. Robert Frey, Restorative Dentist at Espire Dental and Chris White, mucosal melanoma survivor, thriver and advocate. *This presentation was recorded in 2023.
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Learn more from the MRF Director of Advocacy and patient advocates on how they have engaged with their community and policymakers. *This presentation was recorded in 2023.
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Learn more from cutaneous melanoma patients about how to manage fear of recurrence & scan-xiety. *This presentation was recorded in 2022.
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Learn more about how the patient voice is incorporated and can be the center of OM research. *This was recorded in 2022
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Learn more about liver-directed therapies for metastatic OM patients. *This was recorded in 2022
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This course will provide an introductory understanding of how to advocate to your government officials for melanoma priorities.
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Watch the annual OM patient and caregiver symposium, hosted in a hybrid format at Sidney Kimmel Cancer Center at Jefferson Health. This video is part 4 of 4, with a focus on Psychosocial aspects. *This was recorded in August 2022
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Watch the annual OM patient and caregiver symposium, hosted in a hybrid format at Sidney Kimmel Cancer Center at Jefferson Health. This video is part 3 of 4, with a focus on Psychosocial aspects. *This was recorded in August 2022
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Learn about how to handle the financial concerns of a melanoma diagnosis: including the cost of treatment and drug assistance programs, how to navigate work or school, and resources that are available. *This was recorded in 2022.
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Learn more about the clinical trial process and current clinical trials offered for OM patients as well as hear from an OM patient who has participated in a clinical trial. *This was recorded in 2022
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Learn more about the latest in advances in cutaneous and uveal melanomas from experts from Georgetown-Lombardi Comprehensive Cancer Center *This presentation was recorded in 2022.
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Learn more about the first FDA-approved drug to treat metastatic uveal melanoma. *This presentation was recorded in 2022.
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Watch the 10th annual OM patient and caregiver symposium, hosted virtually. *This was recorded in 2021
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Learn more about hospice services and why they are important at end-of-life. *This presentation was recorded in 2021.
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Watch the April 2021 OM Patient Mini Symposium parts 1 & 2 *This was recorded in 2021
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Learn different techniques to cope with an ocular melanoma diagnosis from an OM patient *This was recorded in 2020
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Learn more about advances in uveal (ocular) melanoma *This presentation was recorded in 2020.
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Learn more how to explain an adult's cancer diagnosis to children. *This presentation was recorded in 2020.
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Learn more why sharing your wishes after a cancer diagnosis is so important. *This presentation was recorded in 2020.
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Learn more about safe driving techniques and how to compensate in the setting of monocular vision. *This presentation was recorded in 2019.
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Learn more about adaptive devices and how to compensate in the setting of monocular vision. *This presentation was recorded in 2019.
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Learn more about the impact monocular vision may have on coordination and mobility. *This presentation was recorded in 2019.
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Learn more about the impact monocular vision may have on ocular melanoma patients. *This presentation was recorded in 2019.
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